My AFib adventure: A cautionary tale...

Joined
Sep 26, 2004
Messages
6,119
Reaction score
18,382
Location
Maryland
As a rule, I don't share personal information on here, but for the past 18 months, I've been dealing with a medical issue that might also affect some of you...

In August of 2023, I was feeling weak and out-of-sorts, and when I checked my pulse, I could definitely feel that my heartbeat was very fast and irregular. I went to my primary care doctor, who told me I was in Atrial Fibrillation, and immediately directed me to our local hospital for evaluation.

During the battery of tests they performed on me that day, a doctor introduced himself and asked me if I had a cardiologist. I told him I did not, and he smiled and said "Well, you do now...you're my newest patient." And so began my AFib adventure...

I spent two days in the hospital then, on intravenous and oral medications, as they tried to get my heart rate down, with the secondary -- but unsuccessful -- goal of trying to convert my heartbeat to normal sinus rhythm.

After I was discharged, I was placed on several new prescription medications -- blood thinners and blood pressure meds -- and my new cardiologist scheduled a cardioversion, which is an electrical shock to the heart (basically a defibrillation). The cardioversion (which a friend calls "riding the lightning") worked briefly, but after a few days I was back in AFib.

A second cardioversion and more meds followed, and again, I returned briefly to normal sinus rhythm -- and then went right back into AFib.

The next step was a cardiac ablation, which involves threading catheters up into the heart from the veins in the groin, and cauterizing the malfunctioning nerves in the heart. (The preparation for this is -- ahem -- "interesting". The patient has to be shaved of all body hair, front and back, between the neck and the knees. When my girlfriend saw me after they prepped me, she burst out laughing! I looked like a metrosexual...all I needed was a man bun and a murse!) The procedure was performed in January of last year, and it seemed to work.

By last November, I was back in AFib, and after being given my options by my cardiologist, I opted for another ablation, which was done just before Christmas. Two months later, I feel pretty good, and my heartbeat -- knock on wood -- is normal. I've lost quite a bit of water weight because my circulatory system is working properly again, and I no longer get winded climbing a flight of stairs.

This has been an interesting experience, and I've learned a lot. Besides the obvious lessons -- pay attention to your body, don't dismiss symptoms, try to live a healthy lifestyle -- I learned that when you're on medications, especially cardiac meds, you must take them exactly as scheduled, the same time every day. Don't ever skip a dose, and plan ahead for your refills so you don't run out. I also learned to be very, very attentive to things like my pulse and breathing, and to trust implicitly what my cardiologist tells me.

Also, I've been very grateful for my excellent medical insurance, and I've acquired an even deeper appreciation for living in an area where first-rate doctors and hospitals are readily available.

So for now, I'm keeping my fingers crossed. The real test will come next month, when my lady and I will go to Europe for 16 days, and will be at high altitude in the Alps for about half that time...wish me luck! :)
 
Last edited:
Register to hide this ad
I was diagnosed with AFIB in May 2016. Meds controlled it well for five years but I began having recurring issues and still do. In fact, last night for about twenty minutes, my BPM were 121-148, then it normalized. I am 67 years old and don't care to have an ablation as those work best on people half my age.

I also have sleep apnea and use a CPAP machine. Sleep apnea and AFIB seem to be companion conditions. Prolonged exposure to high temps will cause my AFIB to kick in. Two signs that AFIB is starting for me are extreme agitation and my hearing is super sensitive. Normally I can't hear much of anything.

Best of luck with your issues and enjoy your trip.
 
My oldest brother, who's now 80 and a former marathoner, developed Afib about six years ago. He's on meds and has been through two ablations, the second one seems to have done the trick for him.

I'm a long-time cyclist/distance runner and a couple of years back had some issues with my heart rate spiking for a few beats and then going back to normal levels when pushing hard. It took me a year to find a sports cardiologist who was used to dealing with masters athletes. He fitted me with a portable ECG unit for two weeks and examined the data. He told me that, since I didn't feel those spikes but only saw them in the heart rate data post-ride, to keep doing what I was doing and keep monitoring the data, and to immediately contact him if I started feeling them. He also told me that long-time endurance athletes - runners, cyclists, triathletes, etc. - are ten times more likely to develop Afib than sedentary folks. He also told me that the benefits of remaining active outweigh the risks.
 
Glad to hear that you seem to be on the right track. It seems that within the last couple of years I have encountered a significant number of acquaintances that have developed Afib. (I won't get off into the weeds about possible causes).
2 very close female friends were casually describing their symptoms and I recommended both needed to call their Dr's immediately. Also in both cases I encouraged them to get Apple watches which have the ability to monitor/record HR. The Apple watch data can be downloaded directly to their Dr's and it has been very beneficial in getting their Rx's adjusted and tracking any reoccurrences.
 
I did all the same stuff as the OP last year about this time, doing fine for now. It's kind of scary to go through all that. You quickly find out there is no modesty in the hospital, too. I can definitely relate to you, Beemerguy. I hope you continue to do well and stay healthy. Same best wishes for everyone else in this thread.
 
I have been in Afib for almost ten years. Had two cardioversions. First one lasted about 6 months. Second one about a week. Had an ablation and that lasted almost a year. Second ablation lasted about 2 days. On medication now. Diltiazem and Metoprolol. Heart rate still bounces, but stays between 60 and 80. But I at least didn't get much of a shave for the ablation, only a trim around the XXXX.
 
Last edited:
When I had a heart cath years ago, they just shaved one half of my crotch. The wife called it my poodle cut, which did nothing for my ego. Hated the procedure and will resist another until absolutely lifesaving necessity. In June I got smacked down with blood clots in leg and both lungs. It was touch and go for a while and spent a week in ICU. I had none of the usual signs/symptoms of a pending blood clot and test revealed no cause, so it's blood thinners for life now. By the end of this month, I will have had another sleep study, a VQ scan to check pulmonary hypertension, and the filter installed during the blood-clot episode removed. The medical profession loves old people. Good source of income, which is why over 65 is called "The Golden Years."
 
Last edited:
I've been dealing with a-fib for several years, and it's just been recently that I've figured alcohol consumption, dehydration, and salt intake are the big variables for me to watch to stay out of a-fib. Salt is the biggie - if I consume too much food or drink with excessive sodium, a-fib will greet me several hours later. To a lesser degrees alcohol consumption plays a role, mainly if dehydration is also added. So for me, to stay out of a-fib, keep the salt intake down, stay hydrated, and limit alcohol to no more than a couple glasses of wine in a day. None would of course be better. So for those with fib that haven't connected the dots for triggers, consider what I just wrote, especially salt. So much of what we eat and drink is loaded with sodium. If anyone has more trigger types of wisdom, please add it here!
 
Good luck to the OP and everyone else here with heart problems, I wish you all the best. I had quadruple bypass 2 yrs ago and highly recommend Cardiac Rehab if available. Went 3 days a week and exercised for I hour. One day a week was educational while exercising to learn what to eat and what to avoid, good fats and bad. I try to follow it as closely as I can.

We walk 2 miles a day and have for at least 15 yrs with some sort of steep hill in our walk. I believe it helped me with an easy recovery from bypass surgery. If you're retired you should be able to find minimum 1/2 hour preferably more "FOR YOUR HEALTH", finally doing something for "YOU". If we didn't have the hill to give me a warning sign, I would have just had a heart attack at some point.

GET OUT AND WALK, enjoy the outdoors.

Beemer, I hope you have the best trip of your life in Europe and the Afib leaves you alone. Foreign hospitals can be expensive and your insurance may not cover you overseas. Larry
 
I was diagnosed with AFIB in May 2016. Meds controlled it well for five years but I began having recurring issues and still do. In fact, last night for about twenty minutes, my BPM were 121-148, then it normalized. I am 67 years old and don't care to have an ablation as those work best on people half my age.

I also have sleep apnea and use a CPAP machine. Sleep apnea and AFIB seem to be companion conditions. Prolonged exposure to high temps will cause my AFIB to kick in. Two signs that AFIB is starting for me are extreme agitation and my hearing is super sensitive. Normally I can't hear much of anything.

Best of luck with your issues and enjoy your trip.

Thanks for your kind words. :)

Regarding ablation: I was 70 when I had the first one, and 71 when I had the second. I would still be in AFib if I hadn't had them done.

It's an interesting procedure. The operating room looked like Mission Control at NASA, with a bank of monitors and all sorts of machines. The OR Table was a stainless steel crucifix; I was positioned with my arms out to my sides. The whole process was extremely expensive ($47,000 for the first one, $33,000 for the second) but my insurance covered more than 95% of it.

Ablation is an outpatient procedure. I experienced mild internal pain in my chest for a few days (the result of the catheter having been there), but no other discomfort of any kind.

There were no side effects to speak of, other than the itching as my body hair grew back... :)

https://www.heart.org/en/health-top...atment-of-arrhythmia/ablation-for-arrhythmias
 
Good luck to the OP and everyone else here with heart problems, I wish you all the best. I had quadruple bypass 2 yrs ago and highly recommend Cardiac Rehab if available. Went 3 days a week and exercised for I hour. One day a week was educational while exercising to learn what to eat and what to avoid, good fats and bad. I try to follow it as closely as I can.

We walk 2 miles a day and have for at least 15 yrs with some sort of steep hill in our walk. I believe it helped me with an easy recovery from bypass surgery. If you're retired you should be able to find minimum 1/2 hour preferably more "FOR YOUR HEALTH", finally doing something for "YOU". If we didn't have the hill to give me a warning sign, I would have just had a heart attack at some point.

GET OUT AND WALK, enjoy the outdoors.

Beemer, I hope you have the best trip of your life in Europe and the Afib leaves you alone. Foreign hospitals can be expensive and your insurance may not cover you overseas. Larry

Thank you for your good wishes, sir. And thanks also for bringing up a good point I'd forgotten: One of the things my cardiologist emphasized to me, repeatedly, was the need to get out and walk every single day. I haven't been very diligent about that, but when the weather breaks here I intend to do better... :)
 
Beemerguy53, if you are unfamiliar with blood thinners, be prepared to look like an elder abuse poster boy. A loose eyelash hitting your cheek can cause a Oreo size bruise. I can open the refrigerator and get bruised by the light hitting my bare skin.

Someone mentioned triggers. Salt, caffeine, alcohol, tobacco, stress, anxiety, lack of sleep, underlying and undiagnosed health conditions are all suspected to be factors. Most cardiologists will tell you there could be a few dozen patients in the office at once, all in AFIB, and no common factors.

It is eye opening to sit in the waiting room at your cardiologist's office and notice all the young patients, folks in their late teens and early twenties. People who certainly have not spent a lifetime abusing their bodies because the harmful things were not yet available to them.
 
We walk every day except when it rains, snows, too cold (under 25 degrees) or sidewalks too wet. That's cause of the 20 lb dog getting dirty. On days we don't walk I use the elliptical for 30 minutes watching utube videos to quickly pass time. SO, every day we exercise.

Did AFib once after surgery still in the hospital in recovery. They said it was normal to go into it after heart surgery, scared the hell out of me. The nurses were all calm, just another day. Larry
 
I went through the same last year.

I was asymptomatic though - I didn't notice unless my heart rate got really wacky. I went to the doc after doing a workout and my heart rate never went back to normal for several days.

Meds and a cardioversion didn't work, did the ablation. I didn't get the "neck to knees" treatment though. The ablation worked for a couple weeks, then back into afib.

They increased the dosage of the meds, that seems to work, or it works well enough that I don't notice. Makes me tired though.

Still considering a 2nd ablation if my cardiologist thinks it will be successful. Apparently the success rate for a first timer isn't all that high, so a 2nd is common.
 
I'm glad to Beemerguy and everyone else is doing better. It is an eye opening experience to say the least.
I'm in my late 70s and if you don't mind I will add my story.

I had my bout with this last November. Was having a racing heart beat and went to Urgent care and they sent me to the emergency room. HR was 158, they put me on drugs with an IV and it came back down and went into sinus rhythm. They gave me prescriptions for a blood thinner, Eliquis, and Metroprolol tartrate and put a Ziopatch on my chest. Worked fine for about 2 weeks.
Then it didn't, went to the emergency room and they ran more tests, put an IV in and got my heart rate to lower. Called the hospital about 20 miles away and talked with a cardiologist and he said send me to that hospital and they will have a room ready for me. My wife doesn't drive at night so I called a friend and he took us. Got there and they asked me how I got there. Told them I drove over and they were not pleased. Emergency room was supposed to transport me over. 🙄
They operated the next morning. Since I hadn't been on blood thinners long enough they first did a TEE Transesophageal Echocardiograph. Then they did the Cardiac Ablation. 3.5 hours later I'm back in my room with the "poodle cut" and IV and a monitor on my chest. Felt fine with a little hangover.
Next day I went home and thought, well I'm glad that's over. Wrong. The next afternoon I felt my pulse starting to climb and drove myself over to the emergency room. an IV, more drugs and a Cardio Version later back in sinus rhythm. Sent me home with a change in drugs to Metoprolol Succinate.
Needless to say I was starting to get a little concerned.
But have been fine since. The Ziopatch was on during this whole ordeal and when the Doctor got the results it startled me. My max heart rate had reached 223bpm.
It's been a couple of months and all is well so far. but I still have that nagging feeling that I could have died and every once and a while, at night, I lay there and listen to my heart.
 
I've been dealing with A-Fib for nearly 30 years now, and have gone through everything you've described and more (some multiple times, like cardioversions and ablations). I am one of the few out there who can tell you from first-hand experience the difference between being cardioverted with a standard defribrillator and a bi-phasic defribrillator! :eek: I dealt with this mess throughout the second half of my fire department career, fighting to stay at work through all the meds and treatments. Frankly, A-Fib is NOT easy to live or work with!

In 2001 I took (what was then) the "nuclear option" and had an open-heart procedure called the Maze (a.k.a. - the "Cox" procedure, named after the surgeon who developed it). I was young(er), and tough(er) and did it so I could stay on the job. Back then, catheter ablations were not yet up to the point they are today but the Maze was so invasive (including being on the heart-lung machine for 4 hours) that they no longer do it open-heart any longer. I had a 2-3 year recovery afterwards.

Once my A-Fib was handled, the next issue for many years was A-Flutter (fixed with ablations); then came A-Tach (also fixed with ablations and meds), but for the last several years my heart has been doing great! Once I finally retired I stopped trying to "work with it" and simply allowed my cardiologist(s) to do all the things that would have otherwise prevented me from staying on the job so things have been going so much better. This includes allowing my pacemaker to do much more work than when I was fighting to convince my department that I wasn't dependent on it - this alone was a huge positive change in how I felt.

Good luck with your journey, and welcome to the club! We have really cool jackets. And cookies...:D
 
Thanks for your kind words, guys.

SS336, I experienced the same roller-coaster ride, the same concern you did, wondering if my doctors would find the right combination of meds and treatments to get my heart beating normally again. It really forces you to think about your mortality. I too take Metoprolol, and Eliquis, and a couple of other meds...the ladies at my pharmacy all know me well by now! I'm really happy to hear you're doing okay...

Jon651, I am amazed that your Fire Department allowed you to continue your career after your bout with AFib. I was in the Baltimore City FD from 1974 to 2004, and I am fairly certain I would have been retired, or at least relegated to a position outside of fire suppression (Fire Prevention or something like that) if I'd developed any heart problem then.

I now have 20 years in my second public safety career, and while it isn't as physically dangerous or as stressful as firefighting, it is demanding and does involve a bit of physical activity. When I developed the AFib, and wanted to come back to work afterward, my boss wanted a written statement from my doctor attesting that I was fit for duty, and able to perform my job safely.

We are all indeed very lucky to be living in this country, and in this era. Not too many decades ago, if you had a bad ticker, your doctor couldn't do much more than advise you to take it easy and try to make you comfortable until the inevitable heart failure. Now, even after almost 72 years, and more than 2.7 billion heartbeats (yes, you read that right) I seem to have at least some good years left in the old pump...very cool! :)
 
Beemerguy53 - Once upon a time, we were taught that A-Fib was "benign" and people just had to live with it. I can tell you with absolute authority that AF if NOT benign. The problem is that even though treatments are MUCH better, after all of these years there is no recognized, approved and consistent cure - you just have to get lucky. In the end after I retired I just let my doctor fry all the wiring in the upper chambers of my heart and allow my pacemaker to do its job full-time. This was the best decision as far as my comfort and controlling the A-Fib/A-Flutter/A-Tach that I ever made, and would be my personal recommendation if asked (not that anyone has asked, of course!).

When I was working (and I've been retired for 11+ years now), it was a real fight to stay on the job. I was one of the very few nationwide who actually managed it. The Maze procedure did nearly fix my AF but it took nearly 3 years to recover to a point I could go back in the field and I needed a pacemaker during that time - which was yet another issue because the NFPA fitness standards at the time said I couldn't be dependent on it. That is a long, sordid story about how I stayed at work but I did it - and took a "normal" retirement after 25 years with my last department (29 overall).

The majority of AF cases start when the patient is much older and won't have to deal with all the employment issues I did. Unfortunately for me I was afflicted with it much younger and had to fight, fight, fight. Thank heaven my union local stood by me - I will pay dues with them for life for that support!

Cheers and good luck!
 
Post #24 is an example of why many people will only work for Union companies/employers. Good luck and health to all involved.

Two things I learned from union members in my first week working with them: Never do anything on Thursday/Friday that can't be pushed off until double-time weekends, and--They can make me come to work, but they can't make me work. (Straight from the union members' mouths.)

The union workers lived up to every negative stereotype I ever heard.
 
Fascinating thread, to see the different approaches different people have undergone. I was diagnosed with A-fib about a year ago. After a couple of cardioversions and a couple of different meds, my cardiologist decided to skip the ablations and put in a pacemaker, which he did just last Wednesday. I am still pretty sore, but look forward to seeing how this works out.
 
I had temporary Afib after my bypass, which is not unusual. A further assessment required for the transplant program showed it was gone. I have always pretty pretty active and my ticker is in good shape; the bypass was for an artery that was pretty clogged. That's likely genetic. My care, from everyone of every speciality, has been excellent. Some of it is really devoid of fun, but I do not have to enjoy it - I have to appreciate it.
 
I have had random afib for the last 30 years. It would start, and before I could get to an ER, it would self correct. My heart rate for last 30 years has been between 45 and 50 at rest. I used to drive my Doctor crazy trying to get my heart rate where he wanted it on tread mill tests. About 8 years ago I had an episode in the er they were able to finally document what i was feeling. I had spent a number of visits to ER's, and had one Doc,. tell me I needed to see head shrink and quit wasting their time.
Well multiple trips to ER's ,an attempted oblation, that turned into a cardioversion, when they couldn't induce what they thought was flutter That was followed by 2 more attempts at oblation over the next 3 years. With more trips to er's in between and a defribulation in the ER. I have been on a med. now, for 3 years that seems to be working. I carry ditalizam, in case my heart goes over 100. Crossed fingers haven't had to use it.
I had quit smoking about 25 years go, gave up drinking as recommended by my meds. 6 years ago, gave up all soda and caffine 3 years ago. In addition, I have tried to limit my stress at home and in my volunteer activities. I am lucky, I can feel when I am going tilt, so do deep breathing and mental exerecises to remain calm.
The last 10 months have been a real test two total knee replacemants 3 months apart and therapy. My cardiologist informs me that I can anticipate a Aortic Valve replacement, not sure when. They run tests annually so nothing serious,yet.
Reading all the previous posts I can relate to each of you. May our individual resilience in the face of adversity continue.
 
Back
Top