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12-12-2023, 03:09 PM
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Quote:
Originally Posted by snubbyfan
Day five of the whole brain radiation treatments.
Halfway there.
Lisa's hanging in there, they have her on steroids to reduce the brain swelling and it's helping her to feel more like her normal self. Unfortunately, they interfere with her sleep but they are helping.
Had a meeting with the oncologist on what to do after the brain zapping's done for the cancer in her lung.
Turns out that Lisa will havta be on medication for the rest of her life. I just hope that it'll be a long life.
Tomorrow, after the daily brain zapping, she has a meeting with the radiation oncologist scheduled.
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There are worse things than taking meds for the rest of your life!
Lisa and you are strong people, just hang in there you will prevail!
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12-12-2023, 03:26 PM
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Snubs, try to take some time each day to think happy thoughts. Sounds corny, but it helps. Get to the range when you can. Prayers for you both.
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12-12-2023, 04:19 PM
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prayers continue of course... and daily medication isn't a burden really... I have been taking blood thinners for years - along with everything else... they just becomes part of the day... I understand the difficulty with steroids, I hated what they did to my attitude/ personality (thank goodness my wife is understanding) , they are not forgiving on the mind while they are helping the body... but they are most likely just temporary... again, prayers sent for you both.
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12-12-2023, 06:08 PM
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Good to hear Lisa is doing okay with the treatments and will hopefully be able to keep taking care of you for a long time to come. Glad things are looking better.
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12-12-2023, 06:26 PM
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Thanks for the update, Snubby! Keep on truckin', Lisa!
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12-12-2023, 07:57 PM
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Quote:
Originally Posted by snubbyfan
Day five of the whole brain radiation treatments.
Halfway there.
Lisa's hanging in there, they have her on steroids to reduce the brain swelling and it's helping her to feel more like her normal self. Unfortunately, they interfere with her sleep but they are helping.
Had a meeting with the oncologist on what to do after the brain zapping's done for the cancer in her lung.
Turns out that Lisa will havta be on medication for the rest of her life. I just hope that it'll be a long life.
Tomorrow, after the daily brain zapping, she has a meeting with the radiation oncologist scheduled.
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Helluva way to spend Christmas. Don't sweat the meds - I've been taking daily meds for decades - currently 14 pills of various sorts multiple times per day - and it becomes routine.
Hang in there and all the best to you both.
And another prayer gone.
Last edited by ameridaddy; 12-12-2023 at 08:01 PM.
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12-12-2023, 09:42 PM
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Wayne…continued thoughts and prayers being sent to you and Lisa…keep fighting!
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12-14-2023, 07:45 PM
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Today was Lisa's day 7 out of 10 for brain zapping. Another brain zap tomorrow, the weekend off then the last 2 next week.
She was feeling better at the gym today, got a pretty good workout and some cardio on the rowing machine.
The lung tumors are still making her cough but according to the oncologist, they can't do anything about them until after the full brain radiation treatments are done.
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12-14-2023, 08:00 PM
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Quote:
Originally Posted by snubbyfan
Today was Lisa's day 7 out of 10 for brain zapping. Another brain zap tomorrow, the weekend off then the last 2 next week.
She was feeling better at the gym today, got a pretty good workout and some cardio on the rowing machine.
The lung tumors are still making her cough but according to the oncologist, they can't do anything about them until after the full brain radiation treatments are done.
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Much respect for the way you and Lisa are handling adversity.
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12-15-2023, 10:09 AM
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Quote:
Originally Posted by snubbyfan
Today was Lisa's day 7 out of 10 for brain zapping. Another brain zap tomorrow, the weekend off then the last 2 next week.
She was feeling better at the gym today, got a pretty good workout and some cardio on the rowing machine.
The lung tumors are still making her cough but according to the oncologist, they can't do anything about them until after the full brain radiation treatments are done.
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Sounds like things are slowly working out! The best of wishes to both of you!
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12-15-2023, 10:28 AM
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Prayers lifted up
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12-15-2023, 10:41 AM
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God Bless ya'll Sir
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12-15-2023, 12:15 PM
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Another round going up.
Take care of yourself too.
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12-15-2023, 04:20 PM
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Quote:
Originally Posted by soFlaNative
Another round going up.
Take care of yourself too.
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^^^^^THIS^^^^^^
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12-19-2023, 08:37 PM
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Last brain zap for Lisa today.
Then it was off to the gym.
We both got a pretty good workout.
Lisa did her regular routine and said that she still has the same strength but was down on energy.
I'm hoping that she gets her energy back as she heals from the brain zappings.
Got a meeting with the oncologist tomorrow at 4pm.
We'll have time to sleep in and have a good breakfast.
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12-19-2023, 08:59 PM
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More prayers up.
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12-19-2023, 10:51 PM
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Wayne, I continue to pray for you and Lisa daily. Being a cancer survivor myself I admire your grit.
terry
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12-19-2023, 11:12 PM
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My God; good health to her soon hopefully. All my best to you. She can do it, Brother….
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12-20-2023, 02:53 PM
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Thanks for the update. Prayers for you two continue.
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12-20-2023, 03:26 PM
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Quote:
Originally Posted by raisedin99
Wayne, I continue to pray for you and Lisa daily. Being a cancer survivor myself I admire your grit.
terry
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^^^^ This. Every word.^^^^
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12-20-2023, 03:37 PM
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Quote:
Originally Posted by ladder13
Much respect for the way you and Lisa are handling adversity.
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Hope to continue repeating myself.
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12-20-2023, 03:48 PM
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Prayers and.....
Prayers and all the best for you and Lisa, snubbyman.
From:
Another Wayne
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12-20-2023, 05:11 PM
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I pray for BOTH of you to stay strong and keep fighting this terrible disease! As a fellow cancer survivor, I have always felt like having a positive attitude in everything she does, although difficult at times, is extremely important.🙏
Larry
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12-20-2023, 08:19 PM
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Had a visit with Lisa's Oncologist today. They're gonna give her a coupla weeks off to recover from the brain zappings and doing more scans and tests to find the best type of chemo to use.
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12-20-2023, 09:50 PM
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Quote:
Originally Posted by snubbyfan
Had a visit with Lisa's Oncologist today. They're gonna give her a coupla weeks off to recover from the brain zappings and doing more scans and tests to find the best type of chemo to use.
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Thanks for these updates, Wayne…
You know that we’re all with you and Lisa on this journey.
Continued prayers and best wishes!
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12-21-2023, 04:25 PM
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Lisa's feeling a bit like her old energetic self today.
Her nausea has lessened and her appetite's coming back.
I just hope she has that energy tomorrow at the gym.
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12-21-2023, 05:28 PM
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Quote:
Originally Posted by snubbyfan
Lisa's feeling a bit like her old energetic self today.
Her nausea has lessened and her appetite's coming back.
I just hope she has that energy tomorrow at the gym.
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Thanks for the positive update.
Wishing you and Lisa a Merry Christmas and optimistic New Year.
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213th FBINA
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12-21-2023, 05:48 PM
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Snubby, I went down a similar road with my bride of 56 years. Treasure the gift of every minute that you are given together. And I pray you get a lot of them.
I think you have been given the task of carekeeper. You are up to it. You did not know it, but that is why you have trained. Best wishes friend
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12-21-2023, 07:50 PM
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Quote:
Originally Posted by Heinz
Snubby, I went down a similar road with my bride of 56 years. Treasure the gift of every minute that you are given together. And I pray you get a lot of them.
I think you have been given the task of carekeeper. You are up to it. You did not know it, but that is why you have trained. Best wishes friend
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Lisa and I discussed that. She's supposed to be my carekeeper. I'm the useless cripple with the degenerative motor nerve condition.
We take care of each other.
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12-21-2023, 08:39 PM
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Prayers to you both havent stopped since your first post. God Bless you Both. Stay Strong!
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12-26-2023, 08:13 PM
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Just had the interesting experience of shaving my wife's head.
At least now she won't be shedding all over the house anymore.
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12-26-2023, 09:14 PM
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I know this is tough. I feel for both of you. I am sure you are doing your very best to take care of your wife. Please, don't forget to also take care of yourself.
I wish I may. I wish I might. I wish I could make everything right.
But, I am just a man and it is not mine to plan.
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12-26-2023, 09:39 PM
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Continuing to send up prayers for you and Lisa. You are both incredibly strong and examples to live by.
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12-27-2023, 09:31 AM
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Quote:
Originally Posted by snubbyfan
Just had the interesting experience of shaving my wife's head.
At least now she won't be shedding all over the house anymore.
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I went through the same thing a couple months ago. The pony tail is gone and my goatee fell out. Some old acquaintances don't recognize me right away. Karen bought me a selection of head coverings to keep the old bean warm. It all grew back 15 years ago after a year of interferon and it will again when this round is done. Lisa's hair will grow back. The texture might be a little finer but that's OK. Keep on keepin' it on.
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12-28-2023, 05:26 PM
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Snubbi, I just came across this thread. All my best wishes.
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12-28-2023, 06:02 PM
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All my best wishes and prayers!!
Take care of yourself too!
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12-28-2023, 06:03 PM
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I also just saw this thread. My wife has been cancer free for three years. Our daily prayers go out to all of you and your loved ones.
Be Strong
Jim and Kathie
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12-29-2023, 10:53 PM
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You and Lisa have my continued prayers.
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12-30-2023, 01:25 AM
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I told Missus Smiff......
Quote:
Originally Posted by snubbyfan
Lisa and I discussed that. She's supposed to be my carekeeper. I'm the useless cripple with the degenerative motor nerve condition.
We take care of each other.
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...that she got gypped. I was supposed to take care of her. I got decrepit and she's taken care of me for most of 46 years. 
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01-03-2024, 06:13 PM
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Moving on.
Lisa got a port implanted today and will hopefully start chemo soon.
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01-03-2024, 06:23 PM
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Good luck to both of you. My wife has had her port for several years now. One of the good parts about it is that all the blood draws can come from it now instead of being stuck with a needle in her arm every time they need to do one.
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01-03-2024, 07:11 PM
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Quote:
Originally Posted by snubbyfan
Moving on.
Lisa got a port implanted today and will hopefully start chemo soon.
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Keep moving forward.
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01-03-2024, 10:27 PM
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the port will be a godsend for her.. it was for me... miss it a little when I go for a blood draws now... prayers continue
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01-03-2024, 11:18 PM
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Quote:
Originally Posted by snubbyfan
Moving on.
Lisa got a port implanted today and will hopefully start chemo soon.
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They make things much easier. My sister has had one for her treatments. She has trouble with needles to begin with so just one less thing for her to deal with.
I hope the treatments go well.
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01-04-2024, 08:19 AM
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Quote:
Originally Posted by llowry61
They make things much easier. My sister has had one for her treatments. She has trouble with needles to begin with so just one less thing for her to deal with.
I hope the treatments go well.
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Hey snubbie, I have a Bard power port installed and I can tell you two it is a whole lot better than being stuck with that big IV needle for every infusion in your arm or the back of your hand. One stick through the skin and into the port and you are ready to go. They take blood for the lab work through the port then start the infusion. After the first stick you don't feel a thing. My only complaint is the waiting around for the lab results and for pharmacy to get the drugs up to the room. Bring something to read, or just take a knap. I get my last of eight infusions Wednesday, then another PET/CT scan to see how we did.
I don't know what cocktail of drugs you will see, but in my case the 1st week is a little rough but by the 2nd things feel a little better.
One other thing I get is the Nulasta OnPro. An amazing little device for injecting fragmented E-coli DNA to cause your body to produce more white blood cells for fighting abnormal cells and infections. Side effects: some pretty bad bone pain. It is much better than what they used 15 years ago but the side effect is still there. I go with no narcotic pain killers but sometimes I wish I had them. Hang in there. This too will pass.
My prayers for you are always there. The really good thing is you have each other. Not everyone going through this have that.
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01-04-2024, 09:20 AM
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Glad to see the positive updates!
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01-04-2024, 10:35 AM
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Join Date: Apr 2008
Location: Kalamazoo MI
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Lisa (and you) remain in my prayers every day Snubby.
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Pass it on.
Mark
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01-04-2024, 10:51 AM
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Member
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Join Date: Feb 2017
Location: southern illinois
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Wishing you both only the best, for sure!
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01-04-2024, 06:07 PM
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Member
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Join Date: Jul 2012
Location: WVa East Panhandle
Posts: 28,665
Likes: 71,259
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Quote:
Originally Posted by robvious
the port will be a godsend for her.. it was for me... miss it a little when I go for a blood draws now... prayers continue
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Quote:
Originally Posted by llowry61
They make things much easier. My sister has had one for her treatments. She has trouble with needles to begin with so just one less thing for her to deal with.
I hope the treatments go well.
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Quote:
Originally Posted by Retired W4
Hey snubbie, I have a Bard power port installed and I can tell you two it is a whole lot better than being stuck with that big IV needle for every infusion in your arm or the back of your hand. One stick through the skin and into the port and you are ready to go. They take blood for the lab work through the port then start the infusion. After the first stick you don't feel a thing. My only complaint is the waiting around for the lab results and for pharmacy to get the drugs up to the room. Bring something to read, or just take a knap. I get my last of eight infusions Wednesday, then another PET/CT scan to see how we did.
I don't know what cocktail of drugs you will see, but in my case the 1st week is a little rough but by the 2nd things feel a little better.
One other thing I get is the Nulasta OnPro. An amazing little device for injecting fragmented E-coli DNA to cause your body to produce more white blood cells for fighting abnormal cells and infections. Side effects: some pretty bad bone pain. It is much better than what they used 15 years ago but the side effect is still there. I go with no narcotic pain killers but sometimes I wish I had them. Hang in there. This too will pass.
My prayers for you are always there. The really good thing is you have each other. Not everyone going through this have that.
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This is her second port. She had breast cancer in 2021 and they used a port then. After she was done with all the chemo and radiation, they removed the port.
The new one's been implanted in the same place the old one was at.
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01-04-2024, 06:09 PM
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Member
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Join Date: Jul 2012
Location: WVa East Panhandle
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Lisa has been scheduled to start chemo at 9:20 am on January 9th. We'll need to set the alarm....
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