prostate cancer treatment question

growr

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Friday I was diagnosed with Unfavorable Intermediate Prostate Cancer....Yes, I was overwhelmed to say the least as I have NONE of the traditional symptoms.

The two main solutions seem to be removal, and radiation treatment. I also noticed some activity in the use of laser to treat the hot cells.

There were several other options that included Hi Frequency Ultra Sound, Cyro-genic treatment and something called Proton treatment. My Urologist nixed the Ultra sound and Cyro......don't remember as to why, will call and ask tomorrow.

So, my fellow forum members that have been afflicted with this type of diagnosis, what treatment course did you elect and why?

Randy
 
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My experience with prostate cancer

My gleason score was seven or close to that. Dr was suggesting surgery. I did radiation.
At the time people I knew that went surgery had incontinence issues. Since then I know people who had surgery using the "Da Vinci" technique. Today if I had a really good surgeon that used DaVinci I would probably go surgery.

KNOW THY SURGEON" if you go that way.



Friday I was diagnosed with Unfavorable Intermediate Prostate Cancer....Yes, I was overwhelmed to say the least as I have NONE of the traditional symptoms.

The two main solutions seem to be removal, and radiation treatment. I also noticed some activity in the use of laser to treat the hot cells.

There were several other options that included Hi Frequency Ultra Sound, Cyro-genic treatment and something called Proton treatment. My Urologist nixed the Ultra sound and Cyro......don't remember as to why, will call and ask tomorrow.

So, my fellow forum members that have been afflicted with this type of diagnosis, what treatment course did you elect and why?

Randy[/QUOTE]
 
I was diagnosed five years ago with a PSA reading of 9.0. I elected the radiation and the numbers have been going down ever since. Last month, the reading was .02. The biopsy is the worse part, the rest is no big deal. The treatment was like 30 daily treatments, with very few side effects at all.
 
My Gleason score was 8,and the urologist recommended surgery. The surgeon had over 1,000 cases where he had used DiVinci robots, and is/was the local "expert" on the robotic system. I went the surgery route, and I would NOT recommend it to anyone. He was unable to get all of the malignant tissue, so a year later, with a PSA of 3 and climbing fast, I underwent External Beam Radiology. That was no problem, but 4 years later, I had to have a bladder stimulator put in to help with the incontinence issues.It has helped, but the whole thing has been a big problem. If I had it to do over, I would go either the Beam Radiation, or Proton treatment. The initial and long-term issues from surgery tell me to warn everyone thinking of it to very seriously consider the alternatives. PM me if you want additional info.
John
 
I opted for prostatectomy over 12 years ago. Surgery was via the DaVinci (robotic) method. No surprise complications and recovery was uneventful. PSA has been zero ever since.

A big added benefit is that I can now sleep through the night and when I so choose; pee like a racehorse. No, I am not incontinent.

I chose this course because I had several acquaintances that opted for different treatments such as radiation, Gamma-Knife, cryo-therapy, proton therapy, implanted radioactive seeds, chemo, etc, etc. All of them are now dead and achieved that state only after grisly, gruesome, painful, lingering misery.

My philosophy is simple: If there is cancer then get rid of it - pronto!

Do not hesitate. Find a DaVinci surgeon urologist and go for it.
 
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A close friend is going through treatment right now . He had his prostate removed mainly because he was told if he had the surgery and if they didn't get it all he could have radiation and chemo . But if he had radiation and/or chemo they wouldn't do the surgery later on to remove his prostate . I don't know if this is the case for everyone or not , but you might ask . Hope whichever route you take it works and you come out the other side cancer free .
 
I had DaVinci at age 68. PSA went to zero and a few years later the PSA came up a bit and I had radiation.

PSA went to zero.

A couple years later the PSA is at 0.17 and they say that may or may not be a problem......we just have to keep watching it by testing every three months.

They don't worry until it gets to 5.0 or 6.0 and I'm a long ways from that.

All this means is that my cancer was fairly advanced and still may be dangerous.

Time will tell. The good thing about Prostate cancer is that it's slow and I'm 75 now so I'll probably die of something else anyway.

:)

As far as the methods of treatment, I would not change mine.

DaVinci first, then radiation was the recommendation of all the experts at Mayo.

If you do radiation first you have no chance for surgery later.

That's my experience........so far.
 
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I had a PSA of 11. It had more than doubled in a year between annual check ups.

I was diagnosed with Stage IV, Gleason 10, mixed adenocarcinoma and small cell cancer of the prostate. Too advanced for surgery. Totally out of the blue. Like you, I had no symptoms. I was 65.

First several docs said I was a goner and had best settle my affairs.

I was living in Japan at the time. Ultimately found a doc at Japan's National Cancer Center Hospital who believed she could help me. Went through hormone treatment, chemo and radiation (IMRS). That was five years ago. After my five months of treatment, other than CT scans and PSA checks, I've had no additional treatment. PSA is 0.21. Everything is working well.

I met my doc again last April while visiting Japan, and expressed my gratitude. She congratulated me on my survival.

Randy, my advice is research the hell out of your situation. No one, except your wife or children, cares about it as much as you do. It's your life. You are in charge. Were it me, I'd look into visiting the top cancer hospitals in the US: MD Anderson, the Mayo Clinic or Sloan Kettering.

The hardest part is figuring out what to do. Once you settle on a course of treatment, and it gets underway, it's a lot less stressful.

Good luck.
 
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Hi Randy,


First of all you have my sympathy, but before you rush in and select one of the many available treatments, none of which are particularly pleasant, what is your current age, and how aggressive is the cancer?


I have had elevated PSA since a young man, increasing from the upper level of normal to a present day 22, along with an increasingly large prostate, currently at 160 cc.


Rather than undergoing any invasive procedures I have opted for having a prostate MRI at five year intervals, the results of which have changed over the years from evidence of encapsulated lesion to moving to the transitional layer. A reading of Rads2 (95% No cancer) to Rads3 (equivocal).


Prostate cancer in most cases is very slow in developing, and is often the case that you will finally die with it, rather than because of it, hence the age consideration, and just how aggressive is it?



I am currently 83...


What ever your decision, one can only wish you a good outcome.


Exaviator.
 
Age is an important variable. If relatively young with loving wife and young children, the goal is to stay alive. Since this cancer is slow growing, an older guy might just decide to “forget about it”.

I can’t quote statistics, but my belief is that not many actually die from prostate cancer. At age 64, with a 7 Gleason score (4+3), I chose radiation followed by radioactive seeds. At 76, my psa is essentially non-existent.

Now the bad news: my wife of 25 years struggled with my impotence…..yes you will be impotent. She and I are divorced and I lost most of my life’s belongings in an ugly settlement. When I wash my hands, I immediately need to pee.

In retrospect, at 64 I should have ignored it. Something else, like a heart attack, etc. will likely kill me. I’m told that very young men who die of unnatural causes, are found with prostate cancer.

Just my story. Lots of options, lots of unintended consequences, and very emotionally troubling. In summary, if your under 50, get it treated . if your over 50, my vote is to watch and wait while living life with no regrets. BTW - this davinci machines and the tools are very expensive and they need customers to pay them off!

Send me a private message is you want to hear more. My brother is an MD, so I had good council.
 
I have not had this problem, yet, but every day has the possibility for a new "medical challenge"!

However, since there is a prostate cancer risk for all men, I have been keeping up- to-date on this subject for a long time. Obviously one of the biggest decisions is deciding on a treatment plan. Once that decision has been made you are "committed"!

A very close friend of mine on the east coast does have prostate cancer and he selected the "Cyberknife Solution". He conducted a lot of research before he made his decision. His wife has Stage One Breast Cancer and she also chose the very same treatment method. Both treatments were several months ago and they are both pleased with the outcome.

He provided me with a document with many of the treatment options, plus the considerations that are associated with each one. However, while it is a Microsoft Word document, it is not in the format that the forum accepts, *.docx. If I save it as a *.doc the file size is too large. If you would like to have the document, send a PM to me with your e-mail address.

Cheers!

Bill

From my close friend who has opted for the cyberknife method:


In response to your question about my satisfaction with the recent CyberKnife procedure for my prostate cancer, I offer the following:

"I had a PSA that had climbed to 19 over 5 years, and after 2 biopsies it was determined we need to proceed to a treatment plan.

One option was the “atomic seeds” My urologist did not recommend this because of poor results. Another option was a complete Prostatectomy, and again many adverse side effects…ie months of incontinence and impotence and bowel damage and surrounding tissue. Another option, in situations of enlarged prostate but low level cancer is a TERP (Trans ureteral reconstruction procedure) A good friend is in the process of that procedure now and is having poor results and much bleeding and pain to the point that it is now necessary to repeat the procedure with skeptical outcome. The next procedure that another friend had done in North Carolina was called the “Purple Laser”. Also ineffective to the point that a different procedure is now required.

So, we come down to my situation. I must be very lucky to have the urologist and radiologist that I have because my situation is a walk in the park compared to my friends. We have gone the path of the “CyberKnife”. It is an extremely fine targeting radiation to the prostate. It requires the urologist to place 4 gold markers on the prostate via a needle, ALMOST painless. Then a CT scan and an MRI to identify the location of these markers for the CyberKnife computer.

The next, and final step, is for the CyberKnife procedure. You are escorted into a room with a large robotic machine. You don’t even have to take your clothes off…they lay a blanket over you and tell you to lower your pants to about knee level. From that that point on the radiologist and technician, based on the info entered into the computer based on your MRI and CT scan identifying the gold markers, the CyberKnife begins its thing of rotation to different positions and pausing for about 5 seconds and then on to the next co-ordinates, All in all there are about 30 or more pauses, and believe it or not, you are finished in about 10-12 minutes and you get to go home. (Your EOB will reflect about $1000.00 per minute. Mine was a 5 day procedure with about 15 minutes total each time….the bill??? $12,000.00 per treatment. Total $60K. Thank God for insurance.

Side effects: ALMOST none. Certainly no pain before, during or after. No disruption of bowel or urination or bleeding at any time. I do take once daily a generic version of Flomax. I didn’t think I needed such, but by the 3rd day it was slightly uncomfortable to pee. After that, all is back to normal.

Just as a “side bar” to this topic is: My wife has breast cancer in both breasts. Her doctors and radiologists also use the exact same CyberKnife machine to treat her cancers. We both can’t say enough about how this apparatus gets the job done with follow-up results being excellent. This procedure is also used for very precise brain tumors with amazing results.

So, as they say, the CyberKnife is a win-win choice, at least in our family’s situation."
 
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Randy,
I am 76, currently going through Beam Radiation treatment. 5 days a week for 28 treatments.
I have two types of cancer, one mild, one very aggressive, Gleason score 9+.
Tomorrow 8/22, I will have treatment 16. For the most part, adverse effects are only fatigue and at times mild diarrhea. The fatigue is the worst.
The preparation, such as the hormone shot and gold pins inserts were worst for me than the Radiation treatment, at least so far. My doctor will only state "the treatment plan is working as we want".
Which ever route you choose, I wish you a complete recovery.
PM or email me if you would like to discuss further.
 
My former urologist (now retired, and I have a new one) claimed great success with brachytherapy, which involves implant of radioactive seeds into the prostate. My PSA is medium high, but my current radiologist believes in doing nothing. He says I will likely die of something else before the prostate can kill me. My wife had the proton beam treatment for her lung cancer and it seems to have worked.
Brachytherapy for Cancer - NCI.
 
Cancer runs in my family. It killed my father's father, my father, and sister that was 44 years old. I have 2 scares but praise God at 72 I am cancer free! I have prayed for you both!!!
 
26 months ago a biopsy showed prostrate cancer. My local doctor talked with me about removal surgery vs radiation. He refused to tell me “if I was you I would prefer XXX treatment” , so I went for a second opinion.

A team of doctors at our state teaching hospital (Medical University of South Carolina) said I had been misinformed, I had a more aggressive cancer than I had been told, and surgery was not recommended.

I had radioactive seed implants, 5 weeks old beam radiation, and 24 months of Lupron injections to drive my testosterone levels as low as possible. My “get up and go” got up and went!!

A month ago my PSA was less than .01, but my testosterone level was 3 (a female level is 10-99, a male is 200-600). No more cancer treatments, but I am taking treatments to get my testosterone back up to a reasonable level, and after 2 weeks am feeling much better.

Getting a second opinion saved my life. I recommend anyone diagnosed with any cancer get a second opinion.
 
26 months ago a biopsy showed prostrate cancer. My local doctor talked with me about removal surgery vs radiation. He refused to tell me “if I was you I would prefer XXX treatment” , so I went for a second opinion.

A team of doctors at our state teaching hospital (Medical University of South Carolina) said I had been misinformed, I had a more aggressive cancer than I had been told, and surgery was not recommended.

I had radioactive seed implants, 5 weeks old beam radiation, and 24 months of Lupron injections to drive my testosterone levels as low as possible. My “get up and go” got up and went!!

A month ago my PSA was less than .01, but my testosterone level was 3 (a female level is 10-99, a male is 200-600). No more cancer treatments, but I am taking treatments to get my testosterone back up to a reasonable level, and after 2 weeks am feeling much better.

Getting a second opinion saved my life. I recommend anyone diagnosed with any cancer get a second opinion.

MUSC Urology and the Hollings Cancer Center are top notch!
 
I wish you the best with whatever treatment you follow.

A friend is saying his goodbyes after 7 years of every treatment he could avail himself. Only the Lord knows….All the best.

And God speed Ernest.

His wife let me know the Lord gave him his wings yesterday……


Sent from my iPhone using Tapatalk
 
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