"Gatekeeper" white paper on entering the Hospital.

oddshooter

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This started off a thread I started on trying to - keep shooting till The End. Several folks asked for a paper on my Gatekeeper concepts. Here is the first draft.

Gatekeeper

The Gatekeeper term I use is meant to describe someone that is in charge of managing, coordinating, and verifying a patient’s overall health care. They are an advocate for the patient. A close relative is usually excellent if they learn their role and are capable of carrying it out. They must be willing to work 24/7. No person I love would I leave overnight in a hospital alone. I think the error rate at night is 10 to 1 more than during the day. Number one in accidental deaths in this country is Medical error. It is number three in overall deaths behind cardiac and cancer. If you want to survive a medical encounter you should realize the problem and plan on handling it yourself.

Gatekeeper is a state of mind. It’s a focus on the patient care as well as the medical care of a patient. Advocacy is key. Two medical workers make a mob. Gatekeeper can roam the halls and get the lay of the land. Cafeteria, bath rooms, exits, nursing stations, care type others are getting, numbers on the floor…. A basic function of the Gatekeeper is to get medical assistance when needed. Never rely on a Call Button attached to the bed !!! It can be 30 minutes to never for a response.

Unfortunately, Gatekeeper is also a term used in medical insurance, particularly HMO. The first joke is that their duties are listed as managing a patient’s treatment. Nothing could be less accurate. The gatekeeper is used as a cost cutting device where they are in charge of authorizing referrals, lab orders, and even hospitalizations. They are a choke point for stopping services.

Protocol
Is a term for the standard operating procedure SOP of a medical facility. It dictates the process to be followed. Protocols are used to reduce the errors caused by personnel making up and deciding for themselves what to do. It is an easy way to cover your *** CYA legally. Few medical people have been successfully sued for following protocol. It works best in facilities with inexperienced, poor talent, and uncaring staff. It states a minimum requirement for patient care; but often it becomes the norm, not the minimum.

I find Protocol to be the worst process for delivery of individual, personal care. Protocol is often used as a club to beat a patient into submission. To me, it implies “No Thinking Allowed”.
Forcing nurses to work (3) 12’s per week is wrong. They get tired. Rotating schedules make it worse for many people as they can’t adjust to different sleep schedules. Consequently, the more experienced, better staff tend to work the day shift.

I’m a huge nurse fanboy. I believe the “laying on of hands” is an ancient medical technique that works. A dedicated nurse is a thing to behold and is deserving of all honors bestowed upon them. The healing touch turns out to be a real thing.

I’ve worked with many nurses who’ve had it. Out of a thousand doctors, I’ve met one who had it. Your gatekeeper should be practicing laying on of hands continually.

As I was leaving my last forced stay in a hospital, my surgeon and medical doctor for the last 48 intense hours, DIDN’T RECOGNIZE ME. I’m told I’m quite distinctive and we had just done the exit summary interview 2 minutes before. This doctor looks right past people and sees meat. Couldn’t be more obvious. He may be a great surgeon, but my trust meter for him was pegged at zero.
My gatekeeper reinforced that my feelings were shared by others in the room. Nurses shouldn’t roll their eyes and look up and away, but they do. Watch them for clues.

This doctor needs communication skills training. He will not get it. It’s not on his curriculum. It’s better to let the gatekeeper challenge the doctor than you.
One of the largest issues in medical care is the lack of information sharing and use. Your primary doctor may tell you one thing and then not write it into the patient chart. So no matter what the doctor finds, says, or plans; without clear communication, their staff will not carry out the doctor’s instructions.

Examples: Doctor says stop your current medication and start taking a new medication. Or he may say, I’m writing a prescription for 320mg per day because they are the same price as 160mg. You are supposed to cut the pills in half. This can be a great financial service or an unpleasant medical outcome. What gets written on the prescription label is highly variable. Pharmacies today use the prescription to be a check for the insurance companies. Let there be no doubt, the Pharmacist does not work for you or the doctor. They work for who pays them; the insurance companies.
Example 2: The doctor prescribes a blood thinner and says it’s dangerous to miss a dose or stop. You accidentally drop two into the toilet and flush. When you run out of pills at the end of the month, the pharmacist likely will tell you they can’t refill the prescription because you still have 2 pills; which you don’t. This requires the doctor to rewrite the prescription and everyone knows it takes time to get a doctor on a phone. Sometimes days to weeks.
Smart gatekeepers know this and will work the doctor to get at least an extra month’s supply. This of course infuriates the insurance company because it looks like they are paying for extra, or someone else’s , medications.
Gatekeeper must catch the conversation and monitor the dispensing. Pill caddies are required to remove patient errors.
Example 3: First doctor after carefully reviewing a case file says overnight hospital stay is not recommended. Second doctor cites “Protocol” and says you have no choice but to stay. The two doctors never speak.
Gatekeeper must catch both conversations and let the second doctor know that he may have been hasty in his countermanding of the first doctor. Several things just happened. Your gatekeeper is letting the doctor know gently that he is too quickly basing his order on inadequate information. Your gatekeeper is also letting the second doctor know that he just questioned and disrespected a fellow doctor’s medical orders.

There are a few truisms in medicine, and in life. One of those cliches is, People take care of people they like. Being aggressive, challenging, or abusive is the worst idea going.

Learn the basics of communication:
Name calling is just verboten.
Character assassinations are forbidden as well.
ALWAYS preface a possible negative comment by a positive comment.
Don’t use declarative statements. “That’s wrong”.
Use questions instead “Is that right?” or “That seems different somehow.”
Use personal disparagement “I just can’t remember so many instructions. How do you do it?” “ I might have done it like this and made a big error”.

Don’t refuse medical treatment outright. It will be used against you later.
Instead say “We would prefer not to do that at this time”
“I think it would be prudent to check with Doctor X. I have a question.”
“Does that seem like contradictory instructions from the doctors?”
I feel certain there must be other options. Can you please help me find them?
Gatekeepers are sober, as opposed to the patient on drugs. Remembering or writing down instructions is one of the basic functions.

On occasion, there will often be a gang formed like a lynch mob and surround the bed. Without a gatekeeper, you are totally outnumbered; and they can call orderlies as well. A nursing assistant will follow Protocol and take blood at 5AM even if they have to put you into cardiac arrest and watch you stroke out. Being seen as a “difficult” patient can get you restrained. If you’ve never seen “One Flew Over the Cuckoo’s Nest”, DON’T.

Gatekeepers have the role of the bad guy at times. That’s much preferable to seeing the patient as the bad guy. They are there to deflect all negative toward themselves.
Of course, my gatekeeper delivered a huge box of Reeses’s candies (white chocolate, bits, rounds, crunchy) to the Nursing Station when we arrived. We kept specialty Sea Salt Caramels in the room for when anyone who came by. As you can imagine, we were seldom alone for long. They knew my gatekeeper by first name and asked if he was married. We had the best care on the floor.
People take care of People they like.

Find a bed on the wing. Create a bed with chairs and cushions. Bring a camp lounge chair. Just don’t leave!

I’m still working on this and I would love constructive feedback.

Prescut
Some long term hospital stays make some of the guidelines impossible. Many of us can do 24/7 for a few days. Few can do a year. There's now a section about taking care of the Gatekeeper coming.
 
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Oddshooter, you are quite perceptive and I am impressed with your ability to put the issues at play into words. I say this with a thirty year career in health insurance and managed care. The first person responsible for your health is you. Blessings.
 
As one who went through a aortic valve replacement successfully only to than grt pneumonia and darn near die fromlungs full of fluid l agree with most shown. I never saw the surgeon at any time while in the hospital. I was just that piece of meat with a pocket of insurance money. Even while drowning in my own fluids no surgeon, they had a nurse put the drains in my back while I held the hand of a pretty nurse. Quite an experience and I was so glad to escape that house of horrors.
 
From the OP,

I am very humbled by the many here who have told of their own medical journey. I feel I have a debt to these many posters which will be hard to repay.

I just want to say "Thank you, all". You made my own quest lit with smiles, hope, and gratitude. In what universe is it wrong to cry tears of joy.

Prescut
 
From the OP,

I am very humbled by the many here who have told of their own medical journey. I feel I have a debt to these many posters which will be hard to repay.

I just want to say "Thank you, all". You made my own quest lit with smiles, hope, and gratitude. In what universe is it wrong to cry tears of joy.

Prescut

I agree with most of your Gatekeeper paper with the exception of being there 24/7. I was my husband Gatekeeper/Advocate thru 6 years of cancer treatment and 5 surgeries. I went with him for all of his appointments, treatments, handled all the paperwork, medications, questions & answers. After his last surgery he was hospitalized for 31 days, 18 of those in intensive care. No way I could stay thru all that time. I had to go to a "happy place" which was my daughter's home & family fortunately in the same city. He was verbally abusive to me and most of the medical personal, especially the various therapists. No amount of reasoning with him helped. He signed himself out against medical advice, came home, fell getting into the house, got to his bed then couldn't get up again. Ambulance to hospital, then to nursing home. Was OK there for awhile and then "lost it", I believe he willed himself to die because he realized he could never live the life he wanted again.

If I (We) had been able to convince him to go to the rehab hospital that the doctors had set up for him, his out come could have been very different (or not?)

I tried to be a good Gatekeeper but at times I feel I failed.
 
The end result is always the same.
It’s just differences in timing and routing in how you get there.
Some you can control, some you can’t.
Handling the ones you can’t control is the challenge.
Are you up for it?
I’m not sure that I am.
 
I stayed with my Dixie @85% of the 33 days after she was diagnosed with ovarian cancer. Every 3rd day I would get someone else to stay with her I'd go home shower wash clothes and get a nap then go back. The paperwork was just a blur.........
 
...........
I tried to be a good Gatekeeper but at times I feel I failed.

You did not fail. Rather, you did all you could do mentally and physically in a situation where there was no winning outcome to be had. For that you should be proud.
Blessings to you and others who take on this basically thankless, yet necessary, life task.
 
Pawngal,

I have quickly realized that my stories are laced with positive outcomes and beautiful people. I realized at the same time that all stories don't come out the way we had hoped.

Your story has gotten me back into editing that Gatekeeper paper. I only dealt with a short period of time in which the medical issues eventually worked out. Reality is that we occasionally get dealt a losing hand. It matters in only small amounts that we have tried to make the situation bearable for those we love. Sometimes, poop happens and our character is defined by how we deal with it. There will now be a section on taking care of the Gatekeeper; it does us no good to run the lifeguard into the ground.

I am nothing but impressed that you were able to hang in there for so long. When I was the Gatekeeper, I had to find ways to escape. Being a martyr does no one any good if you find yourself on a cross. You have to keep smiling and being positive for your ward. That's impossible if you run yourself into the ground.

Ddixie's post was right on. He made a schedule and knew what he needed to do to keep sane. He has been incredibly supportive of me the last several weeks and I must call him out here for RECOGNITION by the Smith and Wesson crew. It's members like this that keeps me coming back.

Everyone who reads your post will be better for it.
Thanks so much for sharing,


Prescut
Personal aside:
My wife and I were just honored this weekend by the national Association of Animal Welfare. They awarded the first annual $10,000 innovation prize that bares our name to a Vet in Sacramento for her rescue efforts. At 70, it was a great surprise; we are again very humbled by their recognition of our lifetime efforts in the animal shelter industry. These are the memories that make the tough times go a little smoother.
 
Wow, nice work with the shelter industry!



But thanks again for this fantastic post - I've got it saved and will await updates/new drafts. This work is going to help a lot of people.
 
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