Some prayers this way please

CO_Kid said:
Thank you all (and my wife wonders why I like spending so much time in this forum)

The more we've researched, the better I feel about it. She is not showing any symptoms, coughing, not growing or gaining weight, etc, and the initial test seems to be false a lot. It basically looks for the gene that deals with CF. If the gene is abnormal at all, like in a carrier, it'll pop positive.

We take her in for the sweat test in 2 hours. We should know the result of that by wednesday.
Click to expand...

I'm sure this will be an anxious next few days for you all. Thank goodness your little one is too young to understand; that's a blessing in itself. We'll keep prayers heading skyward for your family, and keep hope alive that the initial test was false in your daughter's case. Hold tight to all the blessings you already have received, and know that He has many more for you and your family in His perfect plan.
 
Sent. May the only person that has blessed a lot of us Bless you and your family with strength and patience to get through this.
 
Sorry to hear that. More prayers for you all, especially for one as young as your daughter. Sometime it seems like life isn't fair.
 
Still thinking about you, your family and daughter. Also very sorry to hear the results did not turn out as we all were hoping. Things will work out, just keep the faith.
 
Thank you for your support everyone. It was a rough day yesterday. I've been doing more research, and there are some good signs. Apparently the average life span for a person with CF is roughly age 37. I read that many experts say that with the continuing research and technology, that a realistic life span for someone born recently with CF is closer to 50. The longest documented life with CF is 79. Of course, she may not make it to kindergarten. It all depends on how fast the symptoms progress, and how she responds to treatment. She isn't showing symptoms yet, but they usually start showing by the first birthday. However, there are many cases where symptoms dont show up for years, even up to age 20. We are going to the Children's hospital in Aurora friday. Luckily for us, one of the doctors from that hospital makes a monthly swing down here to Colorado Springs, so we won't have to drive to Denver every time she has a check up.

My hope is that she can have a happy childhood, and not have to be restricted in everything she does. My father in law works with a guy who has two children with CF. They are around ages 10 and 8. They both play sports and are normal kids, they just have to have nebulizer treatment every couple days.
 
Sorry to hear the news. Will keep praying for you and the whole family also for healing and that the doctors will be amazed at her recovery.
 
I hate to hear that about your little girl. As a father of a 17 month old boy, I couldn't imagine getting that news. I think as fathers we are expected to be the strong ones and have all the answers, but in some cases, especially when it comes to something being wrong with our children it's easy to fall short. Stay strong and trust that all will be ok. Continued prayers for you, your wife and little girl.
 
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