BCG Treatments, let’s discuss em

[Jebus35745]

The second TURBT confirmed the tumor isn’t in the bladder muscle, just the lining. WHEW!! So now looking at 6 BCG treatments, one a week for 6 weeks. Searching BCG is just getting general symptoms after each one and how people felt going through them. Looking for actual experience with people that went thru the 6 BCG’s and opinions or how it went for them.

Not done with the prostate cancer diagnosis yet, have a PET scan and a second opinion from an outside lab. Treatment on this will follow hopefully this month.

So you go home with the fluid in your bladder after they pull the catheter out. You try to retain it for 1.5 to 2 hours at home , is that hard to do? After both TURBT’s he filled the bladder with Chemo, he plugged the catheter so it was retained in the bladder for 1.5 hours.

How long does it take to fill your bladder? Are you in a twilight?

What after effects did you experience after each treatment and how long did they last? Do they make you tired?

Did the BCG cure you and for how long?

Thanks, Larry

 

[soFlaNative]

BCG, TURBT, CBG, PET, GBT.
I know what none of this means excepting WHEW.
Figured the least I could do was bump this somehow in hopes you receive answers.

 

[rustythread]

The second TURBT confirmed the tumor isn’t in the bladder muscle, just the lining. WHEW!! So now looking at 6 BCG treatments, one a week for 6 weeks. Searching CBT is just getting general symptoms after each one and how people felt going through them. Looking for actual experience with people that went thru the 6 CBG’s and opinions or how it went for them.

Not done with the prostate cancer diagnosis yet, have a PET scan and a second opinion from an outside lab. Treatment on this will follow hopefully this month.

So you go home with the fluid in your bladder after they pull the catheter out. You try to retain it for 1.5 to 2 hours at home , is that hard to do? After both TURBT’s he filled the bladder with Chemo, he plugged the catheter so it was retained in the bladder for 1.5 hours.

How long does it take to fill your bladder? Are you in a twilight?

What after effects did you experience after each treatment and how long did they last? Do they make you tired?

Did the GBT cure you and for how long?

Thanks, Larry

Just finished 6-week course--BCG Mondays and some other chemical on Wednesdays. BCG retention for 2 hours or more not problematic at all. You may want to have someone drive you.
YMMV Best of luck to you

 

[16thVACav]

According to the Cleveland Clinic, BCG is Bacillus Calmette- Guerin treatment is the main immunotherapy used for treating early-stage bladder cancer.

 

[wundudnee]

I had bladder cancer when I was 64. I went through the cystopystys and removal of the cancer spots. I then did the six week BCG treatments. They had me lay down for an hour, moving a quarter turn every fifteen minutes. It was fairly uncomfortable for the next few hours. It burned to urinate and I passed a little blood. I developed a hate for Mondays. After the six weeks of treatments I had to do Cystos every three months for awhile then every six months, then every year. It was successful and everything still works as it should. I just had my 86th birthday, so it's been 22years.

Going through all that makes you lose all your bashful feelings.

I wish you well.

 

[Kinman]

Heres what I know about catheters. I was on one for a couple weeks following a radical prostatectomy. The day they wanted to pull my catheter was during the week I was going to be up in Canada for a month. They told me "No problem, you can pull it yourself." They told me to get comfortable on the edge of the bed and to get a firm grip on the catheter where it disappears into my body, then in one fluid motion with gentle pressure pull the plastic tubing out of your unit until the bulb comes free. The one thing they stressed was whatever you do "Do not stop until you get it out." I pulled it off without a hitch but will mention that by the time I had the bulb out I was no longer sitting comfortably on the edge of the bed but standing and panting pretty danged hard.

 

[seasoldier85]

I thought this was going to be about bolt carrier groups... Yikes, I learned more than I cared to. I hope your treatment goes well and prayers for a speedy recovery.

 

[bdGreen]

I hope you have a creditable physician/hospital to administer the medication. My cousin went through the 6 weeks of the bladder filling procedure, and it wasn't successful.
He lives north of MPLS. and we encouraged him to go to the Mayo Clinic in Rochester.
He did.
Went through the complete 6-week ordeal, again.
Fill the bladder, lay on your back, left side, stomach, and right side for about fifteen minutes in each position.
It was successful this go around.
Just the thought of having the catheters and all that was required for the six events but also the probing and monitoring on top of all that.
You will have to do your due diligence after you get home to isolate anyone from using your bathroom facilities until after they have been thoroughly cleaned and sanitized. It's a must with the tuberculin culture that is live.

He won the battle.
The Mayo clinic is the best. I was up in MN visiting and I took him down to the Mayo for one of his treatments. It was an experience. Huge complex and very professional all the way.
Try and go with the best. You won't regret it.

bdGreen

 

[Jebus35745]

Thanks for all the well wishes/good luck. This place is the greatest. It’s nice to touch base with some real life experience. I’m so happy I didn’t have the stage 2 where I loose the bladder, what I have is “VERY” curable. Waiting on the prostate cancer info to be accessed.

I did read somewhere that that the diameter of the catheter used is smaller to make it somewhat more comfortable. I swear the last one they used a garden hose. LOL

If anyone reading this has blood in your urine and it clears up, go see a doctor. The problem didn’t go away, it could be an early warning for something. This way if it’s cancer, it may be early detection and very curable.

If anyone else can add more information, please do. I am using the Cleveland Clinic Urology dept for my procedures. The clinic is one of the better hospitals in the country. I had a quadruple bypass done at Hillcrest hospital, their reputation is worldwide for heart surgery. Larry