Peripheral Neuropothy

Krell1

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Anyone who understands the title knows what I'm talking about. I was diagnosed with this problem a few days ago by a foot doctor. They have no idea what causes it when you're NOT diabetic. I also have no idea if the problem worsens with age or if it's reversible. My problem is tingling in my feet and some loss of feeling. I was prescribed gavapentin (sp) which I was told to take one a day at bedtime and up to 3 if necessary. I tried it the first night and had some of the worst dreams. I got up in the morning feeling terrible. Any others care to share experience and ideas for relief other than these pills?
 
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It sucks. It is a miserable condition that only gets worse and cannot be treated. When your extremities get cold you will be in agony. I have tried a neurologist, chiropractor, and acupuncture. All are extremely expensive and limited or no help. The neurologist first said it was from celiac disease then said it was from drinking. The other two said that if I completely changed my lifestyle (no dairy, no citrus, no red meat, no fried food, no alcohol, etc.) that they MIGHT be able to help. The pain med I was on has a street value of $80 a pill and can cause depression. I quit doctors and meds and just live with the pain.
 
I have taken Gabapentin for a year and a half. Maybe some vivid dreams early on, but nothing since. I have had no pain since.
 
I have taken Gabapentin for a year and a half. Maybe some vivid dreams early on, but nothing since. I have had no pain since.

Gabapentin is the one I gave up on. There is a related but more expensive drug (Lyrica?) but it too was useless.
 
Mine is a supposedly rare side effect of chemo-class oral meds for my cancer. It is extremely annoying, but hard to disassociate from pain caused by gout damage. I'm not taking anything for pain other than for the gout flares.

Supposedly alcohol can cause it as well, but mine goes away in the periods between treatment cycles. Thus the association made.
 
Krell1:

Sorry to hear about your peripheral neuropathy. I'm having problems with this as well. I was on Gabapentin for a while following a car crash that resulted in a closed head injury. I'd rather risk seizures than take that !@#$% medicine. It works great for some people, but not me:

https://en.wikipedia.org/wiki/Gabapentin

Three things I learned that helped reduce the peripheral nerve pain for me:

1. ALWAYS wear shoes when you are out of bed. ALWAYS! Your feet need the support and protection of shoes. My doctor says even house shoes are okay, but she prefers I wear some type of (real) shoe with arch supports, etc. For us older guys, New Balance makes a good, affordable shoe - especially in wide (4E) widths.

2. Stretching the muscles in the feet and lower legs, especially before you go to bed, really helps me. Talk to a Physical Therapist about this, or check this out:

http://www.visittoc.com/provider-di...LL_Plantar_Fasciitis_Stretching_Exercises.pdf

3. Potassium supplements are helpful for me. The easiest and cheapest solution I've found is a small glass of orange juice in the morning. I can tell the difference if I don't have my orange juice in the morning. Bananas don't seem to have the same effect for me, by the way.

I hope this helps.

Good luck,

Dave
 
Anyone who understands the title knows what I'm talking about. I was diagnosed with this problem a few days ago by a foot doctor. They have no idea what causes it when you're NOT diabetic. I also have no idea if the problem worsens with age or if it's reversible. My problem is tingling in my feet and some loss of feeling. I was prescribed gavapentin (sp) which I was told to take one a day at bedtime and up to 3 if necessary. I tried it the first night and had some of the worst dreams. I got up in the morning feeling terrible. Any others care to share experience and ideas for relief other than these pills?

I have the same thing and not diabetic! I had a back injury herniated two discs and was pinching the sciatic nerve: eek
you should see you doc and get your back checked out you may have a bad disc .Better to find out now as it may save you a lot of pain later, Good luck do not hold off getting checked out.Also talk you you Doc about a TENS unit, Or try the cheapie one from the drug store.. Helped me alittle!. That is my 2 cents

Rich
 
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Like others, I have had the condition for over 4 years, and no one i have been to seems to be able to suggest any treatment for it. So I just live with it. It does help a lot to wear shoes, as most of the time I don't notice it nearly as much much with shoes on. I have a brother-in -law with PN, and he has been to numerous doctors of all stripes, and tried about every treatment there is to try with no improvement. There is one local clinic here in town that specializes in the condition, but I suspect that they are no better than anyone else, except they advertise on TV a lot.
 
Gabapentin/Neurontin helps many, and if you have enough loss of muscle mass and consequent weakness that you can no longer cycle most auto pistols, the Beretta 92 series and the Walther P-1/P-38, which use a different locking system, may still work for you.


Do not drink alcohol if you use Gabapentin. It'll increase the effects and may prove dangerous.

I have not had any bad dreams from using it. People vary.

I agree that wearing shoes is vital, and getting them on early in the day prevents foot swelling.
 
I have it too.. My Dr said in my case it is a side effect of MDS, a precursor to Lukemia.
I take Gabepentin with fair results and no side effects.
 
I'm type 2 diabetic... not on any meds for the feet pain, more concerned about what comes with taking them than being off of them.

Some good fitting, comfortable shoes... I switched to "diabetic approved" shoes, which has a roomier toe box, what a difference.

New Balance makes some that have the least amount of "dork factor" in their appearance... I know, the last thing one should be concerned about, but just because I've become an old man doesn't mean I have to look like one.

Going to a wider width in a conventional shoe might do it for you, and a place to start. May of us forget or are unaware that as you get older, your foot width changes, like the rest of your body, and the normal medium width shoe you've been used to buying for decades becomes inadequate. I can't remember the last time I had my foot measured in one of those shoe size contraptions of yesteryear... I only started to suspect the width change when the feet started hurting.

Also, as mentioned... no more footing it around at home in just socks or bare feet.
 
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I have the same thing and not diabetic! I had a back injury herniated two discs and was pinching the sciatic nerve: eek
you should see you doc and get your back checked out you may have a bad disc .Better to find out now as it may save you a lot of pain later, Good luck do not hold off getting checked out.Also talk you you Doc about a TENS unit, Or try the cheapie one from the drug store.. Helped me alittle!. That is my 2 cents

Rich
This sounds familiar. I have two herniated discs and a few more seriously bulged, and have similar symptoms. What's a TENS unit?
 
This sounds familiar. I have two herniated discs and a few more seriously bulged, and have similar symptoms. What's a TENS unit?
Sends low voltage electric current to help block pain, As you know our body runs off of a electrical pulse to work.. It is a drug free way of dealing with pain helps some but not everyone. I had no vertical lift w/left leg.I could squat but not push up. Now I can abit, so some improvement Heres a link to what I have


Empi Select
 
I have it, almost identical to the OP's description. No pain, but my toes tingle and and there is some numbness. It took three docs to figure it out. They kept saying "well you're not diabetic so don't worry about it". Finally my current doc said let's MRI your back. Turns out I have blown disks and nerve compression. Funny thing is I don't have debilitating pain. I use an inversion table. When my back gets to hurting my feet will start buzzing a lot more. The inversion table really decompresses the spine. I credit it for my neuropathy so far not getting much worse in 10 years or so. The advice to check out your back is a good one. Even if you only have mild back pain, there could be significant compression going on.
 
I have severe nerve pain due to a disc that went missing crushing the nerve for 7 years before they would do anything. Now i am fused and it is better, Still not good and debilitating but way better. Get your back checked out please. When I first took Gabapentin I had a 3 day acid trip type experience even though I started it on a Friday night since I drive a lot for work. It "kicked in" on a freeway in a major snowstorm , looked like Star Trek warp drive but different colored stars. I quit taking it but had to take it years later due to the crushed nerve
 
I have this also and I found that an over the counter pill called

Alpha Lipoic Acid from walmart helps the most.

It relieves the pins and needles sensation from feet/legs.

I take one pill twice a day. be sure to eat something right after
you take it. doesnt have to be much, a handful of nuts or a couple
of crackers.

About $8 at walmart. might be worth a try for you.
 
I am close to being diabetic, but so far I'm good. My problem is due to the six back surgeries I've had over the years. My legs are numb, but my feet are worse, and I have trouble with my balance. I shoot trap, and now need a stool so I can sit down while shooting, otherwise I wobble and have trouble keeping my balance. The other shooters have no problem with me sitting down, and it definitely helps.
 
I have the condition and I'm not diabetic. My neuropathy developed
after a failed back surgery. I have lots of back pain and weakness-
numbness in my legs and feet. I'm wobbly on my feet so I haven't
been able to shoot Trap for a couple of years. I've had three new MRIs
and a bunch of x-rays lately and have been thinking about another
surgery. The last thing in the world I want is another surgery but I
can't see spending the rest of my life like this. Definitely get your
back checked out.
 
..... They have no idea what causes it (i.e. peripheral neuropathy - emphasis by g8rb8) when you're NOT diabetic. I also have no idea if the problem worsens with age or if it's reversible. .......tingling ....and some loss of feeling....... gavapentin (sp) (correct spelling is gabapentin - emphasis by g8rb8) ...... I tried it the first night and had some of the worst dreams. I got up in the morning feeling terrible. ..........experience and ideas for relief other than these pills?

cmore - I have this also and I found that an over the counter pill called Alpha Lipoic Acid.....

chaparrito - ......blown disks and nerve compression. .... I use an inversion table. When my back gets to hurting my feet will start buzzing a lot more. The inversion table really decompresses the spine..... The advice to check out your back is a good one......

Gunhacker - I'm type 2 diabetic... ...
Some good fitting, comfortable shoes... I switched to "diabetic approved" shoes, which has a roomier toe box....New Balance makes some that have the least amount of "dork factor" ...

Radco - Re: TENS (Transcutaneous Electrical Nerve Stimulator) - g8rb8 emphasis ........ Sends low voltage electric current to help block pain, ... It is a drug free way of dealing with pain helps some but not everyone.....

Texas Star - Gabapentin/Neurontin.............
Do not drink alcohol if you use Gabapentin....

Double-O-Dave Krell1:
Gabapentin ....works great for some people, but not me:

Three things I learned that helped reduce the peripheral nerve pain for me:

1. ALWAYS wear shoes when you are out of bed.... some type of (real) shoe with arch supports, etc. ... New Balance makes a good, affordable shoe.....
2. Stretching the muscles in the feet and lower legs, especially before you go to bed, really helps me........
3. Potassium supplements are helpful for me.......
zzzippper - It sucks........ I ...just live with the pain.

hoc9sw - ... side effect of chemo-class ..meds for .. cancer. .........alcohol can cause it as well, but mine goes away in the periods between treatment cycles


There is a lot of good information I quoted above.

Peripheral neuropathy is a frustrating condition for patients and doctors and the symptoms of numbness, tingling, burning, and pain more often affect the feet but can also affect the hands.

As alluded to by the above posts there are many causes of peripheral neuropathy - diabetes, chemotherapy, and regular overindulgence of alcohol. Other causes can be vitamin deficiencies (vitamin B-12 most notably and possibly folic acid, i.e. folate, vitamin B-1, i.e. thiamine, vitamin B-6, i.e. pyridoxine, niacin, i.e. vitamin B-3, and possibly vitamin E), autoimmune diseases, chronic infections, thyroid disease, and fairly commonly, idiopathic (i.e. no detectable cause). I am not aware of potassium deficiency causing peripheral neuropathy symptoms but Double-O-Dave Krell1 makes good points about figuring out what works for you and feet cramping is a symptom that could potentially mimic peripheral neuropathy and potassium, magnesium, and calcium supplementation may help those cramping symptoms. Symptoms from a pinch nerve in the low back are not technically peripheral neuropathy but can mimic the symptoms and can be misdiagnosed so those encouraging S&W Forum members to ask their doc to at least consider their low back as the source of their "peripheral neuropathy" symptoms make good suggestions. Most people do NOT need MRI's of their low backs or a battery of blood tests or an EMG to confirm the diagnosis of peripheral neuropathy but it's worth discussing these possibilities with your doctor. Vitamin deficiencies, other than B-12 deficiency, are uncommon, if not rare, as are chronic underlying infections or autoimmune diseases. EMG (electromyogram) is a test using tiny needles or patches placed along the skin to assess nerve function occasionally used to help in the diagnosis of peripheral neuropathy.

There are a number of prescription oral medications that can help the symptoms of peripheral neuropathy but they are roughly only 50% effective and can have side effects. A few of these medications include Lyrica, gabapentin, carbamazepine (Tegretol), amitriptyline, and imipramine. They key thing to trying all of these medications is to avoid side effects and the key to that is to start at a very low dose and very gradually increase the dose. Anyone paying cash for their meds needs to check out goodrx.com. I have no affiliation with and receive no benefit from goodrx.com.

I have never seen anyone successfully use TENS (Transcutaneous Electrical Nerve Stimulation) to successfully overcome the symptoms of peripheral neuropathy but in theory it should work.

Topical treatments might possibly help symptoms, maybe around 50% of the time. Capsaicin cream is over-the-counter and is approved to treat lingering nerve pain from the Shingles. Be careful - it is fairly potent and should be used with care and initially tested on a small area of skin. It probably won't absorb well or seem very effective on the soles of the feet but should potentially be effective on the dorsum (i.e. top) of the feet. Topical lidocaine (i.e. like Novacaine) may be effective but it is prescription and insurance coverage is spotty but a cash price using a goodrx.com coupon might make it a reasonable cost. There are a few "compounding" companies that "compound" combinations of prescription pain relieving/anesthetic medications into a cream to rub into the skin/feet that can help pain but these can be expensive and insurance coverage is spotty and there is no coupon for this at goodrx.com.

A B-complex vitamin supplement containing the above mentioned vitamins may be helpful.

High quality, good fitting (i.e. plenty of toe room), supportive, well-padded shoes are a good idea.

Yes. Peripheral neuropathy is frustrating because there are a number of causes and it's frequently impossible to determine exactly the cause and there is no one single slam-dunk treatment and frequently the treatments have side effects, are inconvenient, or costly. Hang in there and take care.
 
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"You are crazy...It can't be numb and burn at the same time"

In 1997 I was diagnosed with thyroid cancer. After the surgery the Peripheral neuropathy began to slowly appear. It went from sporadic pins and needles and the swollen feeling of my fingers,toes,hands and feet to a burning feeling, much like the after sting of just touching a hot wood stove.

After a few specialty doctors and tests nothing was ever resolved. My endocrinologist tells me it is probably the result of a significant endocrinological event. It was also posited that it may also be the result of the Iodine 131 thyroid thyroid ablation treatment (radioactive.) It doesn't matter...I have the affliction.

A neurologist prescribed neurontin. At the time it was the hot new curative.
This drug in my opinion is dangerous. It was giving me bouts of blood red rage over stupidly small issues. Intellectually I was able to overcome this and quickly stopped taking the drug. This was a listed side affect.

WHAT HELPS:

I talked with my family doctor and asked him what the older more established drug for this affliction would be. He prescribed me elavil (very inexpensive.)
This drug is a low level antidepressant. It is also prescribed for bed wetting and peripheral neuropathy. Taking the full dosage left me with extremely dry mouth in the mornings. For me taking half of the prescribed dosage gave me noticeable neuropathy relief. I have quit taking it as over time I have either learned to ignore the symptoms or they have abated somewhat.

Quality knee socks (GoldToe) seem to provide enough compression to help.
When not using the knee socks I wear lower leg compression sleeves. I buy Zensah as they are reasonably priced come in a variety of sizes, colors and are durable (from Zappos $40)

The socks are worn with long pants. The compression sleeves are less embarrassing with shorts and athletic shoes.

That's all I think I know.
 
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